The Heart of Life

Ok, so it's March. And I've gotten worse at blogging. What can I say?? The weeks are just blowing by!

Well, I've decided to out myself and become the poster child for all things rare.

Last post, I briefly mentioned having migraines. Well, an MRI showed I have more than just chronic migraines.

I have a rare cyst in my nose known as a Tornwaldt's cyst. It's approximately 9 mm in size. And I'll be seeing an ENT (ears, nose, throat) doctor next week about it. I've most likely had it since birth, but if it becomes inflamed or infected, it can cause headaches. Hopefully, I'll find out next week if it needs to come out or not.

Next, I have an underdeveloped left transverse sinus (vein located in the head). The blood flow through it isn't great. The majority of blood going to my brain is going through the right transverse sinus. This vein never fully developed in the womb. As long as nothing happens to the right one, I'll be ok to leave the left one be.

Finally, I have a rare neurological disorder known as Chiari I Malformation. Long story short, my brain sits lower in my head than it should thus creating pressure. If you want to know more about Chiari, this website offers great insight.

I am losing strength in my left side (dominant side). It isn't noticeable to others, but is to me. It can be frustrating at times, but I'm learning how to use my right hand when my left gives out.

On Tuesday of this week, I will be heading to Nashville to see another Neurologist to have my condition assessed. I will be heading home (wohoo!!) on Friday. While at home, I will see an ENT.

I have full faith and trust in the Lord. I know He is watching over me, helping me get through this, and giving me the strength I need during the difficult and frustrating times. I trust in Him with all of my heart, and I know He is the only one who can get me through this.

As unfortunate as this has been, it's been a HUGE blessing at the same time. I can't help but realize how blessed I am! Thanks and glory be to God!!

With that said, because I know the heart of life IS good, I'll leave you with my song. Every time this song plays and I'm near Mom, she always tells me how this song reminds her of me. So, whenever I get down and begin to miss my family, I play this song and smile.

"No it won't all go the way it should, but I know the heart of life is good!"